Team CC does Myrtle Beach

An Evening of Believing

The Sandbox, a local non-profit whose mission it is basically bring joy to children (and their families) facing life threatening illnesses, hosted a FABULOUS event that we got to be a part of. The unrest and riots in Charlotte couldn't derail the spirit of this event or any detail of the event itself other then the location. In no time the entire thing was moved from NASCAR Hall of Fame to an Embassy Suites in Concord. Team CC was on the red carpet in full force. (Only part of the group is pictured below.)

Metachromatic Leukodystrophy (MLD) has taken so much from this family and The Sandbox has helped them make some amazing happy memories with the time they have left with their little girl.

I am so proud of my girl for hanging tough for what was a long night. Addie did not complain once about being tired/hungry/bored nor did I have to fuss for the kids to behave. They really seemed to understand that we were not there for ourselves.

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The Sandbox | An Evening of Believing | Team CC | Metachromatic Leukodystrophy

Team CC

We wear these bracelets and shirts in honor of a special little girl named Carolina Casey - aka CC. CC was diagnosed with a rare disease called Metachromatic Leukodystrophy January 1, 2016. The Caseys were told they would only have 3-5 years left with their sweet and spunky girl. The horrible disease has taken so much from this family but they have handled things with grace, dignity and an amazing amount of strength. This incredible mama even brought my family dinner after Nina was born. I feel blessed to have gotten to know such a special girl and to call her mommy a dear friend!

You lean on your "village" in times of need, so we do what we do - embrace our loved ones and run together!

Hit The Brixx is a local race that is always a favorite in Charlotte. I admit I am not sure who the beneficiary was in years past but this year the race would benefit Kids Path, a program that focuses on enhancing the quality of life for seriously ill children, who had worked with CC. The 5 of us stayed together for the entire 3.1 miles, and we will be by our friend's side through it all! #TeamCC #CaringForCaroline #FMLD #SweatWithYourSquad